This week, I'm really trying to focus on being open to change, and accepting circumstances I can't do anything about. That being said, I also know that I can pray about things, but that God also gave me an able, capable body, and putting effort, hard work, and prayerful thought into action for causes that are on my heart, could lead to great things that can help a lot of people.
I am so thankful that Wyatt has been accepted into this study at Stanford. Next week, he and his Daddy will fly over to meet with the specialists, finish the formal paperwork, and we will begin this journey of learning how to manage blood sugars with the help of a continuous glucose monitor. The constant support and feedback with the doctors and nurse practitioners will be a huge blessing and we are excited to learn new ways with new technology to help our son.
Since mentioning Wyatt's involvement with the study and letting people know about the expenses to get him back and forth to California, there has been an overwhelming outpouring of love, support and prayers. We are doing everything we can to earn extra money for these expenses, but one of my friends told me, "Sometimes it takes a village to raise a child." I wish this was a one time fix, but this is a long term care issue and while we are adjusting and making changes as fast as we can to accommodate this new path we've been given, Wyatt's organs don't have that gift of time.
God bless our family for helping with the initial expenses of getting Wyatt and Jon over to Stanford. We will have 6 weeks until the next two visits and continue to work toward getting help to get him over there throughout the year. We are just putting our trust in the love and the hearts of others who want to help our son.
We are also working to start a non-profit organization for families in this situation, as we've found quite a gap. There are many hard working families, that have long term medical issues that slowly destroy their family. We are trying to share how, although it tears at your heart and is stressful every hour of every day managing your child's care with Type 1 Diabetes, it doesn't have to tear your marriage and your family apart. You have to cling even closer to each other during these times, and keep God at the center of your marriage. When things get hard, remember to pull out those vows and read what you really signed up for in that sacred bond of marriage. In sickness and in health, for better or worse, for rich or for poor....All of those aspects of marriage aren't always fun, but they can actually bring your family closer together, if you have the courage and strength to stay together.
I am thankful every day for my precious children, and the love and support of my family and friends. When my heart is broken and heavy with responsibilities and worry, you are a constant source of encouragement and joy to me. God loves us and is carrying us through the hard times, not abandoning us. I know this is true, and it encourages my efforts to work to "thrive, not just survive" with this autoimmune disease that has mysteriously affected my son, and has changed our lives as a family.
Remember as you are giving to others and taking care of them, to take time for yourself too. I am guilty of not doing that enough, but understand and recognize the need for it. Leading by example, I'm off to play dress up for a Halloween Costume game of BUNCO with some of my friends, while my hubby and I trade off with our kiddos.
Keep up the good fight! If we give up, we'll never get to see the finish line! I'm praying for whatever is on your heart and know that God is guiding all of our decisions.
No comments:
Post a Comment